Communication Autonomy and Self-Advocacy

As H gets older, he is starting to have preferences (and be able to share those preferences) about his AAC device. Whenever I think there is a word we should add I ask him first. After all, this is HIS voice and I want to show him that I respect that. I also want to make sure that he is involved in decision making early on so that he will feel comfortable self-advocating and making changes to his device on his own someday. Continue reading

“Special Interests” – A Poem

(This was originally posted on my Facebook page several months ago but I am thinking about it today as H is happily playing with his carnival toys!)

Special Interests

[Image is a picture of several carnival toys, arranged carefully, with the text “Special Interests”.]

SPECIAL INTERESTS
Your whole body exudes joy and your soul reverberates with excitement
As you sit and organize your carnival rides.
Each has a place; the cars are in attendance; the people are arranged around and on the rides.
Continue reading

“Appropriate” Play


If you are the parent of or work with autistic children, no doubt you’ve heard the term “appropriate play”. Starting from toddler-hood you hear warnings that you need to teach “appropriate play”, that only certain kinds of play are okay and other kinds, like lining up objects or watching wheels spin, are inappropriate. These kinds of play are said to be dangerous, isolating, “red flags”, wrong. Children who like playing this way will be said to have “poor play skills” or “score low” in play skills.


This is, quite simply, a load of garbage. Continue reading

Maybe change can start here…

Kindergarten. That big looming chapter ahead of us that is leaving me with so much on my mind. I’ve heard it is difficult for every parent to send their first child to kindergarten, whether or not they have additional needs. On top of the usual mommy stuff, when your child is still working on communication and is mostly non-speaking, it can be hard not to be paralyzed with fear of the “what if” scenarios.   Continue reading